Alzheimer's as a family disease: When children become "parents"

How Alzheimer's caregivers get pulled into their loved one's reality

Caregivers, most often children and spouses, do not just witness a family member's cognitive decline—they also often become drawn into it, navigating a world in which the typical rules of time, order, or logical continuity may not apply.

An Alzheimer's patient discusses her condition with children

Alzheimer's is a deadly disease that profoundly changes a person's abilities and personality, which makes it difficult to explain to kids. Responding to potentially uncomfortable questions with honesty (and relatable imagery) about the costs and nature of the disease goes a long way in fostering understanding.

See the challenges of navigating Alzheimer's caregiving

This 2025 PBS documentary provides a window into the experiences of three families navigating the struggles and beauty of caregiving for a loved one with Alzheimer's.

How family members disappeared into dementia

This narrative feature describes one family's troubling experience with frontotemporal dementia, or FTD, which emerges in the prime of adult life — as young as 40, in some cases — and degrades the brain's ability to plan, organize, express language, understand social cues, and exercise judgment.

How Alzheimer's disease affected one family as symptoms progressed

News program 60 Minutes interviewed a couple navigating aging and Alzheimer's over a 10-year period to illustrate the effects of the disease on their lives.

After a dementia diagnosis, it's important to plan ahead but also savor the moment

The next steps after a diagnosis include taking lifestyle steps to slow disease progression and completing legal paperwork about long-term medical preferences. It's also important to appreciate the moments and days ahead and find humor in them, when possible. (Some users may encounter a paywall.)

A first-person account of receiving an Alzheimer's diagnosis

Having Alzheimer's is a bit like having a part of your brain sliced away each day, according to author Greg O'Brien. This 34-minute podcast episode introduces O'Brien and his co-host, author David Shenk, as the two embark on a multi-season conversation on Alzheimer's disease and O'Brien's diagnosis.

Alzheimer's disease is the leading cause of dementia and risks rise after age 65

Read this primer about Alzheimer's disease and learn what factors increase the risk of this form of dementia, including genetics, being a woman, and health conditions, including high blood pressure.

America's financial burden from dementia in 2025 was $781 billion

That figure, calculated by researchers at the University of Southern California, includes medical and long-term care costs, unpaid family and friend caretaking, lost productivity for patients and their families, and the economic loss in quality of life for patients and their families. In 2025, they estimate there were 5.6 million people living with dementia.

Dementia caregiver training programs exist—but they aren't common

Comprehensive dementia care programs go beyond offering support to caregivers. They train people on how to modify their homes, communicate with their loved ones with dementia, and cope with the stress of caregiving, among other skills. Yet despite evidence showing their effectiveness and the economic benefit of avoiding unnecessary emergency room visits, these programs are often poorly funded and difficult to find.

Alzheimer's can lead to brain shrinkage, with an average of around 2% of volume reduction per year

Financial caregiving 101

In this podcast episode, a financial expert outlines how to prepare to financially take care of an elderly parent before they get sick or an emergency happens. This includes ensuring their payments are automated, getting access codes for their cell phones and accounts, and more.

Researchers are exploring neural links between Alzheimer's and autism

Recent DNA sequencing and molecular biology studies suggest that similarities in genes, neural circuitry and patterns of disease warrant further exploration to potentially better understand both conditions and how to treat them. (Some users may encounter a paywall.)

The children of parents who died on 9/11 share their stories in remembrance

Many children of 9/11 victims were too young to remember their parents who died. They’ve grown up living with the tension between having a personal connection to the day but few, if any memories. Read some of their stories.

True crime survivors often deal with the fallout from their association long after the case is closed

Collier Landry was a preteen when he notified police and later testified that he had overheard his father killing his mother. His role in the case cost him his dog and adoptive sister, and, as recently as 2023, led his extended family to reject him.

A super-sniffer smelled her husband's Parkinson's disease years ahead of symptoms

She discovered she could smell diseases, including Parkinson's, tuberculosis, Alzheimer's, cancer, and diabetes. Working with an analytic chemist, she's learned she can smell subtle changes in odor—ones that smell consistent across individuals with the same disorder—even before symptoms manifest.

After being diagnosed with lupus, O'Connor moved to her family's Georgia farm

In 1950, O'Connor began feeling ill and returned to Georgia, where she was diagnosed with lupus, the same disease that killed her father when O'Connor was just 15. After the diagnosis, O'Connor and her mother moved to Andalusia, the family farm north of Milledgeville, Georgia.

Finding the way home through flavor

In the fall of 1996, 9-year-old Alvin Chang rushed into his family's kitchen to find his grandmother making his absolute favorite dish: kimchi. This interactive story follows Chang's yearslong attempt to recreate the flavor from his childhood home.

Explore this interactive visualization of the IVF journey as a parent or child

This step-by-step graphic takes the viewer through different challenges and stages of the IVF journey, from a parent's and a child's perspective, including a parent's struggle when other families become pregnant around them, even as IVF is not working for their family.

Stranger pays for a family's breakfast tab and writes heartfelt note praising the father of three kids

In Fort Worth, Texas, an Emergency Room doctor wearing scrubs was enjoying a meal with his wife and three children. While getting ready to pay, the family learned that their $85 bill had already been settled, with a kind note left behind. The message was signed by "a retired Army Medic" who thanks the man for being a good father.

Read Ray Dalio's reflection on his son's death

One of Dalio's sons, Devon Dalio, died in a car crash in December 2020. In a LinkedIn post, Dalio said Devon's death triggered an enormous amount of pain and reflection.

Anne Frank's father, Otto, speaks to the BBC

The 13-year-old Jewish girl Anne Frank has inspired millions with her optimistic diaries amid Nazi oppression in the Netherlands. In 1976, her father—the sole survivor among Anne's immediate family—showed the world the original copy of one of Anne's three diaries in this BBC interview. Hear why Otto decided to publish the diaries and how that decision changed his life.

Watch a Yale University psychologist explain his new supportive parenting anxiety therapy

Dr. Eli Leibowitz says that accommodating a child's fears and anxieties—say, sleeping on the floor next to them or submitting to their requests to repeatedly come tell them goodnight—can further their anxiety. Instead, parents should change how they approach fear to equip children to think they don't need parental rescue.

A mother goes viral for sharing tips for making her home a "hang out" spot for her son and his friends

A mom shared an Instagram reel of her college-aged son and friends hanging out and playing cards in her dining room. She wrote a note explaining how she helped make this happened, and provided tips to other parents hoping to keep their children visiting home for a long time. She encouraged parents to keep snacks in the house, say yes when their kids asked to hang with friends, and to be okay with a bit of a mess, among other things.

A teenage Springsteen struggled with his father

Springsteen’s father didn’t understand why his son was interested in pursuing a music career, leading to a tense relationship that was often exacerbated by his father’s struggles with mental illness.

In recent years a child anxiety expert has created and tested a novel phobia and anxiety treatment approach for children, focused on changing how parents respond to the fears.

Use this tool to calculate the dollar value of your parental mental load, from meal planning to coordinating after-school care, then see resources that help generate solutions.

Bill Nye did not have children for fear of passing on ataxia

In his 2017 documentary, Nye revealed the congenital, neurological condition on his father's side of the family, which is characterized by a lack of balance and problems with fine motor movement. He has since learned he likely does not have the disease, though both his siblings have shown symptoms.

20,000 letters to the advice columnist 'Dear Abby' provide insight into prevailing sex, religion, and LGBTQ fears, anxieties, and concerns from the 1950s onward.

Salvador Dalí believed he was his own dead brother, who had died nine months before he was born

In 1939, baseball star Lou Gehrig delivered his inspirational 'Luckiest Man' speech after retiring due to the health condition that now bears his name.

A Yale student wrote a profound essay about the consulting industry's influence on elite college students that was published in a book of her writing after she died in a post-graduation car accident.

A researcher recently discovered an interview from 1967 between groundbreaking journalist Joan Didion and the Grateful Dead, years before the band became an institution.

Cultural norms about how to handle the bodies of loved ones in communities in West Africa have hampered Ebola responses.

Listen to an in-depth conversation on the links between Parkinson's disease and herbicide exposure and the challenging pace of scientific investigation.

In 2009, the nation was gripped by the story of a missing young boy who was believed to be floating over Colorado in a homemade balloon, until it was revealed that he was at home the whole time.

Crows are believed to have intelligence on par with a seven-year-old child and demonstrate complex behaviors, from problem-solving with tools to recognizing human faces.

Discover the catastrophic consequences of a failure of the US electrical grid—something that is more likely than many Americans think.

Indefinite cloning of some endangered species may not sustain their longevity because cloning success rates decrease as genetic mutations accumulate.

Apeirophobia is an overwhelming fear of living forever, perhaps stemming from the brain's inability to conceptualize an infinite life.

This real-time tracking of the hantavirus cruise ship outbreak in May 2026 offers a unique glimpse into the global reach of the outbreak and whether the virus sickened passengers and their communities around the world.

The story of Dollree Mapp, whose legal challenge over her 1957 conviction for possessing "obscene material" led to a major strengthening of the Fourth Amendment

Explore the archaeological treasures of Pompeii, the city buried under volcanic ash when Mount Vesuvius erupted in 79 CE.

After NASA's Voyager 1 captured Earth as a single pixel as it left the solar system in 1990, astronomer Carl Sagan used the image to reflect on humanity's fragility and the responsibility to protect 'the only world we've ever known.'

The history of many kitchen appliances involves unexpected discoveries and applications, including wartime radar turned hamster defroster and replacing an 'ice king' with heat-stealing boxes.

Poison ivy's rash-causing compound is found in the plant's roots, stem, and leaves—so coming into contact with any part of the plant can lead to rashes for the 85% of people who are allergic to it.

Fireworks-related ER visits are on the rise—in 2024, they increased by 52% as compared to the prior year.

Domino's Pizza's 30-minute delivery guarantee was responsible for the chain's 1980s surge, but it was discontinued after the company was found liable for delivery driver accidents.

Abraham Lincoln was almost assassinated weeks before his inauguration as he traveled from Illinois to DC through Baltimore in 1861; it took two independent claims for Lincoln to be convinced the threat was real

See how Budweiser's famous Clydesdales spend their days at Warm Springs Ranch, where roughly 70 to 80 of the beer brand's giant horses can be found at any given time.